Detalhe da pesquisa
1.
Understanding the impact of tuberous sclerosis complex: development and validation of the TSC-PROM.
BMC Med
; 21(1): 298, 2023 08 08.
Artigo
Inglês
| MEDLINE | ID: mdl-37553648
2.
Impact of hospitalization for vaso-occlusive crisis on health-related quality of life in children with sickle cell disease.
Pediatr Blood Cancer
; 70(12): e30691, 2023 Dec.
Artigo
Inglês
| MEDLINE | ID: mdl-37749772
3.
Distress in parents of children with first-onset steroid-sensitive nephrotic syndrome.
Pediatr Nephrol
; 38(12): 4013-4022, 2023 12.
Artigo
Inglês
| MEDLINE | ID: mdl-37380933
4.
Development of a standard set of PROs and generic PROMs for Dutch medical specialist care : Recommendations from the Outcome-Based Healthcare Program Working Group Generic PROMs.
Qual Life Res
; 32(6): 1595-1605, 2023 Jun.
Artigo
Inglês
| MEDLINE | ID: mdl-36757571
5.
Health-related quality of life of children with first onset steroid-sensitive nephrotic syndrome.
Eur J Pediatr
; 182(10): 4605-4614, 2023 Oct.
Artigo
Inglês
| MEDLINE | ID: mdl-37548700
6.
Neurocognitive, Psychosocial, and Quality of Life Outcomes After Multisystem Inflammatory Syndrome in Children Admitted to the PICU.
Pediatr Crit Care Med
; 24(4): 289-300, 2023 04 01.
Artigo
Inglês
| MEDLINE | ID: mdl-36688688
7.
Internalizing problems before and during the COVID-19 pandemic in independent samples of Dutch children and adolescents with and without pre-existing mental health problems.
Eur Child Adolesc Psychiatry
; 32(10): 1873-1883, 2023 Oct.
Artigo
Inglês
| MEDLINE | ID: mdl-35616715
8.
Health-related quality of life in infants, toddlers and young children with sickle cell disease.
Pediatr Blood Cancer
; 69(1): e29358, 2022 01.
Artigo
Inglês
| MEDLINE | ID: mdl-34699122
9.
Longitudinal Development of Health-related Quality of Life and Fatigue in Children on Home Parenteral Nutrition.
J Pediatr Gastroenterol Nutr
; 74(1): 116-122, 2022 01 01.
Artigo
Inglês
| MEDLINE | ID: mdl-34694264
10.
Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal.
Qual Life Res
; 31(1): 241-254, 2022 Jan.
Artigo
Inglês
| MEDLINE | ID: mdl-34324137
11.
Linking the RCADS-25 to the PROMIS® pediatric item banks Anxiety and Depressive Symptoms in a general Dutch population sample.
Qual Life Res
; 31(5): 1587-1595, 2022 May.
Artigo
Inglês
| MEDLINE | ID: mdl-35023000
12.
Advances in measuring pediatric overall health: the PROMIS® Pediatric Global Health scale (PGH-7).
Eur J Pediatr
; 181(5): 2117-2125, 2022 May.
Artigo
Inglês
| MEDLINE | ID: mdl-35165756
13.
Views of patients and parents of children with genetic disorders on population-based expanded carrier screening.
Prenat Diagn
; 42(9): 1201-1210, 2022 08.
Artigo
Inglês
| MEDLINE | ID: mdl-35734853
14.
Including the voice of paediatric patients: Cocreation of an engagement game.
Health Expect
; 25(4): 1861-1871, 2022 08.
Artigo
Inglês
| MEDLINE | ID: mdl-35751406
15.
Perceived stress, family impact, and changes in physical and social daily life activities of children with chronic somatic conditions during the COVID-19 pandemic.
BMC Public Health
; 22(1): 1106, 2022 06 03.
Artigo
Inglês
| MEDLINE | ID: mdl-35658938
16.
Follow-up of infants with colic into childhood: Do they develop behavioural problems?
J Paediatr Child Health
; 58(11): 2076-2083, 2022 11.
Artigo
Inglês
| MEDLINE | ID: mdl-36054703
17.
COVID-19 lockdown impacts the wellbeing of parents with infants on a Dutch neonatal intensive care unit.
J Pediatr Nurs
; 62: 106-112, 2022.
Artigo
Inglês
| MEDLINE | ID: mdl-34642075
18.
Parenting a child with Marfan syndrome: Distress and everyday problems.
Am J Med Genet A
; 185(1): 50-59, 2021 01.
Artigo
Inglês
| MEDLINE | ID: mdl-33034422
19.
A qualitative study on the experiences of haemophilia carriers before, during and after pregnancy.
Haemophilia
; 27(6): e675-e682, 2021 Nov.
Artigo
Inglês
| MEDLINE | ID: mdl-34415675
20.
Managing women-specific bleeding in inherited bleeding disorders: A multidisciplinary approach.
Haemophilia
; 27(3): 463-469, 2021 May.
Artigo
Inglês
| MEDLINE | ID: mdl-33314402